International Albinism Awareness Day: From pale skin to vision problems, know hidden challenges linked to condition

International Albinism Awareness Day: From pale skin to vision problems, know hidden challenges linked to condition

New Delhi: Albinsim is a congenital disease that impacts the production of melanin, the pigment that gives the skin and eyes colour. The condition affects one in 17,000 people in the world who are born with Albinism. In India, nearly one lakh people are affected with the condition.

More Than Just Light Eyes: What is Albinism?

In conversation with News9, Dr Sakshi Srivastava Senior Consultant, Department of Dermatology at Jaypee Hospital Noida, “Albinism is a group of inherited conditions that reduce the production of melanin, the pigment responsible for our skin, hair, and eye colour. This results in a spectrum of pigmentation, ranging from very light hair and pale skin to irises that appear blue, pink, or brown. Contrary to popular belief, albinism isn’t a single condition but rather a collection of several gene variations.”

Beyond Skin Deep: Understanding the Beauty of Albinism

The impact of albinism extends beyond aesthetics. Melanin plays a crucial role in protecting our skin from the sun’s harmful rays. People with albinism are more susceptible to sunburn and have a higher risk of skin cancer. Additionally, melanin influences the development of the optic pathways, and its absence can lead to vision problems like nystagmus (involuntary eye movements) and reduced visual acuity.

While there’s no cure for albinism, some preventive measures can significantly improve the quality of life for those with this condition. Here are five key tips for managing albinism:

• Sun Protection: Since sunburns and skin cancer pose a higher risk, hats, long-sleeved clothing, and SPF 30+ sunscreen are essential companions.

• Regular Skin Checks: Early detection is key. Schedule regular appointments with a dermatologist to monitor any skin concerns.

• Vision Care: Regular eye exams are crucial to manage vision problems like nystagmus and reduced visual acuity.

• Sun Avoidance: Seeking shade during peak sunlight hours, typically between 10 am and 4 pm, is advisable.

• Supplements: In some cases, vitamin D supplements might be recommended by a doctor, as sun exposure is a primary source of vitamin D production.

It’s important to remember that albinism is not contagious. People with albinism lead healthy lives, but they simply require some additional care to manage their sun sensitivity and vision. By raising awareness and fostering understanding, we can create a more inclusive environment where everyone, regardless of pigmentation, feels valued and accepted. After all, beauty comes in all shades, and albinism adds a unique and vibrant touch to the human tapestry.

 Albinism is a group of inherited conditions that reduce the production of melanin, the pigment responsible for our skin, hair, and eye colour. On International Albinism Awareness Day, let’s deeply understand what is albinism?  Health Conditions Health News: Latest News from Health Care, Mental Health, Weight Loss, Disease, Nutrition, Healthcare