New Delhi: Epilepsy is a neurological disorder characterized by recurrent seizures, which can affect daily life in numerous ways. Individuals living with epilepsy often face challenges that go beyond managing seizures, including social stigma, emotional distress, and lifestyle adjustments. However, it is possible to lead a fulfilling life despite the condition with the right strategies and support. Women with epilepsy face the biggest challenge daily, especially during marriage pressure & post-delivery.
In an interaction with News9Live, Dr Amit Shrivastava, Director, of Neurology, at Max Super Speciality Hospital, Noida, explained how life can be for an epilepsy patient and what can be done to make things easier.
Daily Challenges of Living with Epilepsy
One of the biggest challenges for individuals with epilepsy is the unpredictability of seizures. This uncertainty can make daily activities, such as driving, working, or engaging in social events, more difficult. Many people with epilepsy are restricted from driving due to safety concerns, which can limit independence and mobility.
Employment is another area where epilepsy can create obstacles. Some individuals struggle with workplace discrimination or difficulty finding jobs that accommodate their medical needs. Employers may have misconceptions about the condition, leading to biases that affect hiring and job retention.
Social stigma remains a significant challenge for people with epilepsy. Many individuals fear being judged or misunderstood, leading to social isolation and mental health issues such as anxiety and depression. Additionally, concerns about experiencing a seizure in public can cause stress and hesitation in participating in social activities.
Choice of medicine & managing them is also a critical daily concern, especially for women of childbearing age.
Anti-epileptic drugs (AEDs) can help control seizures, but they often come with side effects such as drowsiness, dizziness, or mood changes. Adherence to a strict medication schedule is essential to maintain seizure control, but it can be challenging for some individuals.
Solutions and Coping Strategies
Despite these challenges, there are several ways to manage epilepsy effectively and improve quality of life.
Medical Management: Regular check-ups with a neurologist and adhering to prescribed medications can significantly reduce seizure frequency. Almost 70-80 % of epilepsy disorders can be managed easily by simple medical treatment. In some cases, alternative treatments such as surgery or dietary therapies like the ketogenic diet may be recommended.
- Lifestyle Modifications: Getting adequate sleep, reducing screen time, reducing stress, avoiding alcohol, and maintaining a healthy diet can help minimize seizure triggers. Identifying and avoiding personal seizure triggers is also essential.
- Workplace and Social Support: Educating employers and colleagues about epilepsy can help reduce workplace discrimination. Joining support groups and advocacy organizations can provide emotional support and practical advice.
- Seizure Preparedness: With the emerging technology, smartphones, good Wi-fi connectivity, and mobile apps available in the market; better monitoring, awareness, and ease of treatment of attacks is now possible. Wearing a medical alert bracelet, informing close friends and family about seizure first aid, and using seizure detection devices can enhance safety, control of seizures & peace of mind. By implementing these strategies and fostering a supportive environment, individuals with epilepsy can navigate daily challenges and lead fulfilling lives.
Living with epilepsy comes with a great deal of challenges, and to decode them for patients, News9Live interacted with a neurology expert at Max Hospitals. Health Conditions Health News: Latest News from Health Care, Mental Health, Weight Loss, Disease, Nutrition, Healthcare
